Elvina Scott (50) feels her daughter’s forehead for a fever.
Elvina Scott (50) feels her daughter’s forehead for a fever.
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Craig Street (65) stands beside his daughter’s hospital bed.
Craig Street (65) stands beside his daughter’s hospital bed.
Colby’s morning nebulizer treatment.
Colby’s morning nebulizer treatment.
On the morning of November 25th, 2019, the seizures started.
On the morning of November 25th, 2019, the seizures started.
 Colby Street (14) is unable to intake food on her own, so a Nasogastric Tube (NG tube) has been her only form of nutrients for the past week.
Colby Street (14) is unable to intake food on her own, so a Nasogastric Tube (NG tube) has been her only form of nutrients for the past week.
Colby looks up and smiles at her grandmother, Violet Street, on a hospital visit.
Colby looks up and smiles at her grandmother, Violet Street, on a hospital visit.
“Coral is having some sadness about a very different Christmas this year.” - Elvina Scott (50) on 12/12/2019
“Coral is having some sadness about a very different Christmas this year.” - Elvina Scott (50) on 12/12/2019
Elvina Scott (50) takes a break from sifting through never-ending bills to look at pictures of Colby when she could walk at age 3.
Elvina Scott (50) takes a break from sifting through never-ending bills to look at pictures of Colby when she could walk at age 3.
Craig Street (65) carries his daughter, Colby Street (14) from her stroller to her bed, while 11-year-old sister, Coral Street (11), occupies her time.
Craig Street (65) carries his daughter, Colby Street (14) from her stroller to her bed, while 11-year-old sister, Coral Street (11), occupies her time.
Coral Street (11) and Craig Street (65) in an embrace saying goodbye as Coral goes back home from visiting her sister.
Coral Street (11) and Craig Street (65) in an embrace saying goodbye as Coral goes back home from visiting her sister.
“Through all of this, my gaze turns to Coral. What is her experience? What are her needs now and are they being met?” - Elvina Scott (50) on 11/25/2019
“Through all of this, my gaze turns to Coral. What is her experience? What are her needs now and are they being met?” - Elvina Scott (50) on 11/25/2019
 Coral (11) and Heather (41) on a Monday morning before school. Heather is a long-time caregiver turned family friend.
Coral (11) and Heather (41) on a Monday morning before school. Heather is a long-time caregiver turned family friend.
The Streets’ home.
Elvina and Craig’s bedroom/attic storage area.
E-mods (Environmental Modifications Services) funded widening the Streets’ only bathroom in order to fit Colby and a caregiver at the same time.
E-mods (Environmental Modifications Services) funded widening the Streets’ only bathroom in order to fit Colby and a caregiver at the same time.
Elvina Scott (50) feels her daughter’s forehead for a fever.
Elvina Scott (50) feels her daughter’s forehead for a fever. The fever Elvina is feeling for is a beginning sign of an infection from surgery. This will be the last morning Colby Scott (14) spends waking up in her bed at home before being admitted into the hospital to treat complications.
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Craig Street (65) stands beside his daughter’s hospital bed.
Craig Street (65) stands beside his daughter’s hospital bed. Colby Street (14) is now being treated for sepsis in addition to pneumonia. Colby’s doctors still cannot locate the source of the infection, but the antibiotics she is prescribed are lowering the effectiveness of her seizure medication.
Colby’s morning nebulizer treatment.
Colby’s morning nebulizer treatment. At 6 weeks post-op, Colby is in respiratory distress, and oxygen intake is a “point of obsession.”
On the morning of November 25th, 2019, the seizures started.
On the morning of November 25th, 2019, the seizures started.Between noon on November 25 and 1 P.M. on November 26, Colby had suffered through 40 seizures and counting. The infection still had not been located. Craig Street (65) holds his daughter’s hand as she drifts in and out of a medically induced sleep.
Colby Street (14) is unable to intake food on her own, so a Nasogastric Tube (NG tube) has been her only form of nutrients for the past week.
Colby Street (14) is unable to intake food on her own, so a Nasogastric Tube (NG tube) has been her only form of nutrients for the past week. Colby will likely stay on the NG tube until the antibiotics have ran their course.
Colby looks up and smiles at her grandmother, Violet Street, on a hospital visit.
Colby looks up and smiles at her grandmother, Violet Street, on a hospital visit.
“Coral is having some sadness about a very different Christmas this year.” - Elvina Scott (50) on 12/12/2019
“Coral is having some sadness about a very different Christmas this year.” - Elvina Scott (50) on 12/12/2019 This year, The Streets will spend Christmas at Strong Memorial Hospital in Rochester, NY.
Elvina Scott (50) takes a break from sifting through never-ending bills to look at pictures of Colby when she could walk at age 3.
Elvina Scott (50) takes a break from sifting through never-ending bills to look at pictures of Colby when she could walk at age 3.
Craig Street (65) carries his daughter, Colby Street (14) from her stroller to her bed, while 11-year-old sister, Coral Street (11), occupies her time.
Craig Street (65) carries his daughter, Colby Street (14) from her stroller to her bed, while 11-year-old sister, Coral Street (11), occupies her time. Colby has been in the hospital for 6 weeks. She has just moved to the Rehabilitation Center at Strong Memorial Hospital from the Pediatric Ward at the Golisano Children’s Hospital in Rochester, NY. Colby is the youngest patient in the wing.
Coral Street (11) and Craig Street (65) in an embrace saying goodbye as Coral goes back home from visiting her sister.
Coral Street (11) and Craig Street (65) in an embrace saying goodbye as Coral goes back home from visiting her sister. She will not see her father or sister again until Christmas.
“Through all of this, my gaze turns to Coral. What is her experience? What are her needs now and are they being met?” - Elvina Scott (50) on 11/25/2019
“Through all of this, my gaze turns to Coral. What is her experience? What are her needs now and are they being met?” - Elvina Scott (50) on 11/25/2019
Coral (11) and Heather (41) on a Monday morning before school. Heather is a long-time caregiver turned family friend.
Coral (11) and Heather (41) on a Monday morning before school. Heather is a long-time caregiver turned family friend. She watches Coral while Craig and Elvina are with Colby at the hospital.
The Streets’ home.
The Streets’ home.
Elvina and Craig’s bedroom/attic storage area.
Elvina and Craig’s bedroom/attic storage area.
E-mods (Environmental Modifications Services) funded widening the Streets’ only bathroom in order to fit Colby and a caregiver at the same time.
E-mods (Environmental Modifications Services) funded widening the Streets’ only bathroom in order to fit Colby and a caregiver at the same time. They never fixed Colby’s bedroom wall on the other side.
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